I won't go into the details of my extensive wait for Dr. Weber - we'll just say it was "as usual." He said everything looked good, as in, as it should look. He wants me to come back again in 3 months for an MRI to make sure he "got it all." He better have gotten it all!!! That'll be the baseline, then I'll get an MRI every 6 months for a couple of years and then yearly. I asked about my stuffy ear and bleeding nose and he said both were normal with radiation. It should subside in a few weeks. He wants me to see Gidley in a couple of weeks for my ear (big surprise) and recommended Ocean Nasal Spray for my nose. We also talked about my bottom lip - he still thinks it could come back. My facial weakness isn't completely gone, but the lip is the weakest.
Had a good visit with Dr. Skoracki. When he walked in, he immediately had a pained look on his face when he saw mine. It makes me smile when someone has an honest reaction. (Except for the lady at the movies that could not stop staring at me. I wanted to ask her if she'd like to take a picture!) He tried to take a quick look and tell me to come back in 4 months. I told him to park it, I have a list of questions! Here's what I found out:
Revision surgery will be no sooner than 6 months post-rad. Follow-up appt in 4 mos. I could push out surgery longer because the effects of radiation could take up to two years. (The tissue could continue to shrink that long.) It may take multiple surgeries to take out the thigh flap a little at a time. We'll play this one by ear. He can also revise the pooch on the leg scar if I want him to. In the meantime, I can use whatever make-up, cover up, spray-on tan to conceal it as long as I don't find it irritating to my skin. (I'll wait for the skin to completely heal first, 3-4 weeks.) The hair on my face may still fall out, but if not, laser removal is an option (as is plucking or depilatory creams).
Last night I noticed that my ears are crooked (maybe they were before surgery, I just never looked). He did agree that the right ear sticks out a little more. Didn't sound like there was much he could do about it. yippee.
Here's the really swell news... according to Dr. Skoracki, the lost hair on my head is gone for good. The radiation completely destroys the hair follicles. BUT, he can recommend a great doctor that might be able to perform a hair transplant. O...M...G!!!
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